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DEVELOPMENT OF A SATISFACTION QUESTIONNAIRE FOR CANCER PATIENTS IN TURKEY - TÜRKİYE'DEKİ KANSER HASTALARI İÇİN MEMNUNİYET ANKETİ GELİŞTİRME

Year 2019, Volume: 4 Issue: 1, 13 - 23, 18.01.2019
https://doi.org/10.35232/estudamhsd.479076

Abstract














Purpose is to develop and validate a novel
patient satisfaction questionnaire for Turkish cancer patients. A questionnaire
has been constructed. The survey questions relate to patient satisfaction with
healthcare providers, medical care received and hospitals, in addition to
questions exploring the expectations of the patients about advanced care. 710
cancer patients participated in the survey from eight public hospitals in
Ankara. Both exploratory and confirmatory factor analysis have been employed to
verify the scale dimensions. A hypothetical model was evaluated by structural
equation modelling to determine the adequacy of goodness-of-fit to sample data.
The exploratory factor analysis identified three interpretable dimensions which
explained 92 per cent of the variance for the patient satisfaction. The
subscales derived from these factors were satisfaction from healthcare
providers; satisfaction from hospital and satisfaction from health service.
Each subscale had acceptable to excellent internal consistency (Cronbach’s
alpha ranged from 0.70–0.95). Structural equation modelling resulted in a
sufficient model fit of 19 items within three domains.  This study developed and validated a reliable
patient satisfaction instrument for cancer patients in Turkey.  The instrument showed excellent psychometric
properties, thus it can be incorporated into an existing hospital quality
monitoring system to monitor patient satisfaction.








References

  • 1. Teunissen, S.C., Wesker, W., Kruitwagen, C., de Haes, H.C., Voest, E.E., de Graeff, A. (2007). Symptom prevalence in patients with incurable cancer: a systematic review. Journal of Pain Symptom Management, 34(1), 94-104
  • 2. Akin, S., Can, G., Aydiner, A., Ozdilli, K., Durna, Z. (2010). Quality of life, symptom experience and distress of lung cancer patients undergoing chemotherapy. Eur J Oncol Nurs, 14(5), 400-409
  • 3. Barbera, L.,Seow, H.,Howell, D.,Sutradhar, R.,Earle, C.&Liu, Y. et al.,(2010). Symptom burden and performance status in a population‐based cohort of ambulatory cancer patients. Cancer,116(24), 5767-5776
  • 4. Bağçivan, G., Tosun, N., Kömürcü, Ş., Akbayrak, N., Özet, A. (2009). Analysis of patient-related barriers in cancer pain management in Turkish patients. J Pain Symptom Manage, 38(5), 727-737
  • 5. Cleeland, C.S., Mendoza, T.R., Wang, X.S. et al. (2000). Assessing symptom distress in cancer patients. Cancer, 89(7), 1634-1646
  • 6. Stelfox, H.T., Gandhi, T.K., Orav, E.J., Gustafson, M.L. (2005). The relation of patient satisfaction with complaints against physicians and malpractice lawsuits. The American Journal of Medicine, 118, 1126–1133
  • 7. Heyland, D.K., Cook, D.J., Rocker, G.M. et al. (2010). The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire. Palliative Medicine, 24(7), 682-695
  • 8. Kristjanson, L.J. (1993). Validity and reliability testing of the FAMCARE Scale: measuring family satisfaction with advanced cancer care. Social Science & Medicine, 36(5), 693-701
  • 9. Yabroff, K.R., Mandelblatt, J.S. & Ingham, J. (2004). The quality of medical care at the end-of-life in the USA: existing barriers and examples of process and outcome measures. Palliative Medicine, 18(3), 202-216
  • 10. Brédart, A., Mignot, V., Rousseau, A. et al., (2004). Validation of the EORTC QLQ-SAT32 cancer inpatient satisfaction questionnaire by self-versus interview-assessment comparison. Patient Education and Counseling, 54(2), 207-212
  • 11. Schafer, J.L. & Graham, J.W. (2002). Missing data: our view of the state of the art. Psychological Methods, 7, 147–77
  • 12. Kline, R. (2005). Principles and Practice of Structural Equation Modeling. 2nd ed. New York, NY: The Guilford Press
  • 13. MacCallum, R.C.&Austin, J.T. (2000). Applications of structural equation modeling in psychological research. Annual Review of Psychology, 51, 201–226
  • 14. Jemal, A., Bray, F., Center, M.M., Ferlay, J., Ward, E., Forman, D. (2011). Global cancer statistics. CA: A Cancer Journal for Clinicians., 61(2), 69-90
  • 15. Nunnally J & Bernstein I. (1994). Psychometric theory. 3rd ed. New York, NY: McGraw-Hill, Inc.
  • 16. Beach, M.C., Sugarman, J., Johnson, R.L., Arbelaez, J.J., Duggan, P.S., Cooper, L.A. (2005). Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care?. The Annals of Family Medicine, 3(4), 331-338
  • 17. Moore, I.N., Snyder, S.L., Miller, C., Qui An, A. (2007). Confidentiality and Privacy in Health Care from the Patient's Perspective: Does HIPPA Help. Health Matrix, 17, 215
  • 18. Heyland, D.K., Dodek, P., Rocker, G. et al.(2006). What matters most in end-of-life care: perceptions of seriously ill patients and their family members. Canadian Medical Association Journal, 174(5), 627-633
  • 19. Guerriere, D.N., Zagorski, B., Fassbender, K., Masucci, L., Librach, L., Coyte, P.C. (2010). Cost variations in ambulatory and home-based palliative care. Palliative Medicine,24(5), 523-532
  • 20. Ong, L.M., Visser, M.R., Lammes, F.B., de Haes, J.C. (2000). Doctor–patient communication and cancer patients’ quality of life and satisfaction. Patient Education and Counseling, 41(2), 145-156
  • 21. Hudon, C., Fortin, M., Haggerty, J.L., Lambert, M., Poitras, M.E. (2011). Measuring patients’ perceptions of patient-centered care: a systematic review of tools for family medicine. The Annals of Family Medicine., 9(2), 155-164.

DEVELOPMENT OF A SATISFACTION QUESTIONNAIRE FOR CANCER PATIENTS IN TURKEY - TÜRKİYE'DEKİ KANSER HASTALARI İÇİN MEMNUNİYET ANKETİ GELİŞTİRME

Year 2019, Volume: 4 Issue: 1, 13 - 23, 18.01.2019
https://doi.org/10.35232/estudamhsd.479076

Abstract














Çalışmanın amacı, Türk kanser hastaları için
yeni bir memnuniyet anketi geliştirmektir. Anket soruları, hastaların ileri
düzey bakım konusundaki beklentilerini araştıran soruların yanı sıra sağlık
hizmeti sağlayıcıları, tıbbi bakım ve hastanelerdeki hasta memnuniyeti ile
ilgilidir. Ankara'daki sekiz devlet hastanesinden 710 kanser hastası
araştırmaya katıldı. Ölçek boyutlarını doğrulamak için açımlayıcı ve de
doğrulayıcı faktör analizi kullanılmıştır. Bir hipotetik model, örnek verilere
uygunluğun yeterliliğini belirlemek için yapısal eşitlik modellemesi ile
değerlendirilmiştir. Açımlayıcı faktör analizi, hasta memnuniyeti için
varyansın yüzde 92'sini açıklayan üç yorumlanabilir boyut belirlemiştir. Bu
faktörlerden elde edilen alt ölçekler; sağlık hizmeti sağlayıcılarından
memnuniyet, hastane memnuniyeti ve sağlık hizmetlerinden memnuniyet. Her bir
alt ölçek mükemmel iç tutarlılık nedeniyle kabul edilebilirdi (Cronbach alfa
değeri 0.70-0.95 arasındaydı). Yapısal eşitlik modellemesi, üç alan dahilinde
19 maddeden oluşan uygun bir model oluşturmuştur. Bu çalışma, Türkiye'de kanser
hastaları için güvenilir bir hasta memnuniyeti aracını geliştirdi ve onayladı.
Ölçme aracı mükemmel psikometrik özellikler gösterdi, böylece hasta
memnuniyetini izlemek için mevcut bir hastane kalite izleme sistemine dahil edilebilir.








References

  • 1. Teunissen, S.C., Wesker, W., Kruitwagen, C., de Haes, H.C., Voest, E.E., de Graeff, A. (2007). Symptom prevalence in patients with incurable cancer: a systematic review. Journal of Pain Symptom Management, 34(1), 94-104
  • 2. Akin, S., Can, G., Aydiner, A., Ozdilli, K., Durna, Z. (2010). Quality of life, symptom experience and distress of lung cancer patients undergoing chemotherapy. Eur J Oncol Nurs, 14(5), 400-409
  • 3. Barbera, L.,Seow, H.,Howell, D.,Sutradhar, R.,Earle, C.&Liu, Y. et al.,(2010). Symptom burden and performance status in a population‐based cohort of ambulatory cancer patients. Cancer,116(24), 5767-5776
  • 4. Bağçivan, G., Tosun, N., Kömürcü, Ş., Akbayrak, N., Özet, A. (2009). Analysis of patient-related barriers in cancer pain management in Turkish patients. J Pain Symptom Manage, 38(5), 727-737
  • 5. Cleeland, C.S., Mendoza, T.R., Wang, X.S. et al. (2000). Assessing symptom distress in cancer patients. Cancer, 89(7), 1634-1646
  • 6. Stelfox, H.T., Gandhi, T.K., Orav, E.J., Gustafson, M.L. (2005). The relation of patient satisfaction with complaints against physicians and malpractice lawsuits. The American Journal of Medicine, 118, 1126–1133
  • 7. Heyland, D.K., Cook, D.J., Rocker, G.M. et al. (2010). The development and validation of a novel questionnaire to measure patient and family satisfaction with end-of-life care: the Canadian Health Care Evaluation Project (CANHELP) Questionnaire. Palliative Medicine, 24(7), 682-695
  • 8. Kristjanson, L.J. (1993). Validity and reliability testing of the FAMCARE Scale: measuring family satisfaction with advanced cancer care. Social Science & Medicine, 36(5), 693-701
  • 9. Yabroff, K.R., Mandelblatt, J.S. & Ingham, J. (2004). The quality of medical care at the end-of-life in the USA: existing barriers and examples of process and outcome measures. Palliative Medicine, 18(3), 202-216
  • 10. Brédart, A., Mignot, V., Rousseau, A. et al., (2004). Validation of the EORTC QLQ-SAT32 cancer inpatient satisfaction questionnaire by self-versus interview-assessment comparison. Patient Education and Counseling, 54(2), 207-212
  • 11. Schafer, J.L. & Graham, J.W. (2002). Missing data: our view of the state of the art. Psychological Methods, 7, 147–77
  • 12. Kline, R. (2005). Principles and Practice of Structural Equation Modeling. 2nd ed. New York, NY: The Guilford Press
  • 13. MacCallum, R.C.&Austin, J.T. (2000). Applications of structural equation modeling in psychological research. Annual Review of Psychology, 51, 201–226
  • 14. Jemal, A., Bray, F., Center, M.M., Ferlay, J., Ward, E., Forman, D. (2011). Global cancer statistics. CA: A Cancer Journal for Clinicians., 61(2), 69-90
  • 15. Nunnally J & Bernstein I. (1994). Psychometric theory. 3rd ed. New York, NY: McGraw-Hill, Inc.
  • 16. Beach, M.C., Sugarman, J., Johnson, R.L., Arbelaez, J.J., Duggan, P.S., Cooper, L.A. (2005). Do patients treated with dignity report higher satisfaction, adherence, and receipt of preventive care?. The Annals of Family Medicine, 3(4), 331-338
  • 17. Moore, I.N., Snyder, S.L., Miller, C., Qui An, A. (2007). Confidentiality and Privacy in Health Care from the Patient's Perspective: Does HIPPA Help. Health Matrix, 17, 215
  • 18. Heyland, D.K., Dodek, P., Rocker, G. et al.(2006). What matters most in end-of-life care: perceptions of seriously ill patients and their family members. Canadian Medical Association Journal, 174(5), 627-633
  • 19. Guerriere, D.N., Zagorski, B., Fassbender, K., Masucci, L., Librach, L., Coyte, P.C. (2010). Cost variations in ambulatory and home-based palliative care. Palliative Medicine,24(5), 523-532
  • 20. Ong, L.M., Visser, M.R., Lammes, F.B., de Haes, J.C. (2000). Doctor–patient communication and cancer patients’ quality of life and satisfaction. Patient Education and Counseling, 41(2), 145-156
  • 21. Hudon, C., Fortin, M., Haggerty, J.L., Lambert, M., Poitras, M.E. (2011). Measuring patients’ perceptions of patient-centered care: a systematic review of tools for family medicine. The Annals of Family Medicine., 9(2), 155-164.
There are 21 citations in total.

Details

Primary Language English
Subjects Clinical Sciences
Journal Section Research Article
Authors

Salih Akyüz 0000-0001-7518-3989

Julide Yıldırım 0000-0002-4739-6028

Dilek Öztaş 0000-0002-8687-7238

Publication Date January 18, 2019
Submission Date November 5, 2018
Published in Issue Year 2019 Volume: 4 Issue: 1

Cite

Vancouver Akyüz S, Yıldırım J, Öztaş D. DEVELOPMENT OF A SATISFACTION QUESTIONNAIRE FOR CANCER PATIENTS IN TURKEY - TÜRKİYE’DEKİ KANSER HASTALARI İÇİN MEMNUNİYET ANKETİ GELİŞTİRME. ESTUDAM Public Health Journal. 2019;4(1):13-2.

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