Research Article
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A comparative examination of social perception, network structure, important nodes, and discourses regarding ASD awareness over online networks: A social network and content analysis

Year 2021, Volume: 4 Issue: 2, 293 - 309, 31.05.2021
https://doi.org/10.31681/jetol.924084

Abstract

The purpose of this research is to examine activities carried out on Twitter, which is a social media platform, on April 2 Autism Awareness Day; network structure in Turkey and in a global context, interaction patterns, the important nodes, user profiles, hashtag usage, and social mode within the context of the Twitter messages and discourses. In the research, mixed research method was adopted, and social network analysis and content analysis methods were used. The sample constitutes a total of 16565 people with 2790 people from Turkey and 13775 people from all over the world. According to the findings in the sample and Turkey as well as the global clustered-community group structures has been observed that the structure of the network. When compared with global examples of effective institutions related to the ASD in Turkey in the global context, the process of institutions and corporate entities has been determined to be more effective. It is seen that especially famous people who are known in the global context are involved in the process in order to reach more audiences. It is found that hashtag use in Turkey is limited, for example, on the other hand, in a global context hashtag use is more diverse to reach different target groups Comparative concept maps revealed that fewer themes were issued in Turkey while there was a wide range of themes in the global context. Social mode is positive in both samples.

References

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  • Alsehemi, M. A., Abousaadah, M. M., Sairafi, R. A., & Jan, M. M. (2017). Public awareness of autism spectrum disorder. Neurosciences, 22(3), 213-215. https://doi.org/10.17712/nsj.2017.3.20160525
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5). 5 ed. American Psychiatric Association.
  • Berelson, B. (1952). Content analysis in communication research. Free Press.
  • Biber, K., Cankorur, H., Akçay, Z. N., & Şumnulu, B. (2018). Çocukları okul öncesi eğitime devam eden annelere otizm spektrum bozukluğuna yönelik farkındalık eğitimi. Electronic Turkish Studies, 13(11), 345-362. http://dx.doi.org/10.7827/TurkishStudies.13556.
  • Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorder. Journal of Psychologists and Counsellors in Schools, 14(2), 151-161. https://doi.org/10.1017/S1037291100002466
  • Bourgeron, T. (2016). Current knowledge on the genetics of autism and propositions for future research. Comptes Rendus Biologies, 339(7-8), 300-307. https://doi.org/10.1016/j.crvi.2016.05.004
  • Boyd, B. A., McCarty, C. H., & Sethi, C. (2014). Families of children with autism: A synthesis of family routines literature. Journal of Occupational Science, 21(3), 322-333. https://doi.org/10.1080/14427591.2014.908816
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  • Clauset, A., Newman, M. E., & Moore, C. (2004). Finding community structure in very large networks. Physical Review E, 70(6), 066111. https://doi.org/10.1103/PhysRevE.70.066111
  • Creswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative and qualitative approaches to research. Merrill/Pearson Education.
  • Dillenburger, K., Jordan, J. A., McKerr, L., Lloyd, K., & Schubotz, D. (2017). Autism awareness in children and young people: Surveys of two populations. Journal of Intellectual Disability Research, 61(8), 766-777. https://doi.org/10.1111/jir.12389
  • Divan, G., Vajaratkar, V., Desai, M. U., Strik‐Lievers, L., & Patel, V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190-200. https://doi.org/10.1002/aur.1225
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  • Guthrie, W., Swineford, L. B., Nottke, C., & Wetherby, A. M. (2013). Early diagnosis of autism spectrum disorder: stability and change in clinical diagnosis and symptom presentation. Journal of Child Psychology and Psychiatry, 54(5), 582-590. https://doi.org/10.1111/jcpp.12008
  • Hansen, D., Shneiderman, B., & Smith, M. A. (2010). Analyzing social media networks with NodeXL: Insights from a connected world. Morgan Kaufmann.
  • Harel, D., & Koren, Y. (2001). A Fast Multi-Scale method for drawing large graphs. In Graph Drawing: 8th International Symposium, GD 2000, Colonial Williamsburg, VA, USA, September 20-23, 2000, Proceedings (No. 1984, p. 183). Springer Science & Business Media.
  • Hayward, S. M., McVilly, K. R., & Stokes, M. A. (2019). Autism and employment: What works. Research in Autism Spectrum Disorders, 60, 48-58. https://doi.org/10.1016/j.rasd.2019.01.006
  • Hendricks, D. (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32(2), 125-134. https://doi.org/10.3233/JVR-2010-0502
  • Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17(1), 103-116. https://doi.org/10.1177/1362361312441266
  • Huguet, G., Ey, E., & Bourgeron, T. (2013). The genetic landscapes of autism spectrum disorders. Annual review of genomics and Human Genetics, 14, 191-213. https://doi.org/10.1146/annurev-genom-091212-153431
  • Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120, 1183-1215. https://doi.org/10.1542/peds.2007-2361
  • Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46(3), 942-953. https://doi.org/10.1007/s10803-015-2637-9
  • Korkmaz, B. (2010). Otizm: Klinik ve nörobiyolojik özellikleri, erken tanı, tedavi ve bazı güncel gelişmeler. Türk Pediatri Arşivi, 45(2), 37-44.
  • Landa, R. J., & Kalb, L. G. (2012). Long-term outcomes of toddlers with autism spectrum disorders exposed to short-term intervention. Pediatrics, 130(Supplement 2), S186-S190.
  • Lord, C., & Bishop, S. L. (2015). Recent advances in autism research as reflected in DSM-5 criteria for autism spectrum disorder. Annual Review of Clinical Psychology, 11, 53-70. https://doi.org/10.1146/annurev-clinpsy-032814-112745
  • Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702-711. https://doi.org/10.1177/1359105311422955
  • Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., Christensen, D. L., Wiggins, L. D., Pettygrove, S., Andrews, J. G., Lopez, M., Hudson, A., Baroud, T., Schwenk, Y., White, T., Rosenberg, C. R., Lee, L., Harrington, R. A., Huston, M., … Hall-Lande, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR. Surveillance Summaries, 69(4),1-12. https://doi.org/10.15585/mmwr.ss6904a1
  • Marsack, C. N., & Perry, T. E. (2018). Aging in place in every community: Social exclusion experiences of parents of adult children with autism spectrum disorder. Research on Aging, 40(6), 535-557. https://doi.org/10.1177/0164027517717044
  • Moh, T. A., & Magiati, I. (2012). Factors associated with parental stress and satisfaction during the process of diagnosis of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6(1), 293-303. https://doi.org/10.1016/j.rasd.2011.05.011
  • Noterdaeme, M., & Hutzelmeyer-Nickels, A. (2010). Early symptoms and recognition of pervasive developmental disorders in Germany. Autism, 14(6), 575-588. https://doi.org/10.1177/1362361310371951
  • Özçelik, A. A., Soysal, Ş., Arhan, E., Demir, E., Gücüyener, K., & Serdaroğlu, A. (2015). Autism Spectrum Disorder Management Practices and Level of Knowledge Among General Pediatricians. Gazi Medical Journal, 26(4), 158-162.
  • Ozonoff, S., Iosif, A. M., Baguio, F., Cook, I. C., Hill, M. M., Hutman, T., Rogers, S. J., Rozga A., Sangha S., Sigman, M., Steinfeld, M. B., & Young, G. S. (2010). A prospective study of the emergence of early behavioral signs of autism. Journal of the American Academy of Child & Adolescent Psychiatry, 49(3), 256-266. https://doi.org/10.1016/j.jaac.2009.11.009
  • Pelletier, K., Brown, M., Brooks, D. C., McCormack, M., Reeves, J., Arbino, N., Bozkurt, A., Crawford, S., Czerniewicz, L., Gibson, R., Linder, K., Mason, J., & Mondelli, V. (2021). 2021 EDUCAUSE Horizon Report Teaching and Learning Edition. EDUCAUSE. https://library.educause.edu/resources/2021/4/2021-educause-horizon-report-teaching-and-learning-edition
  • Pisula, E. (2011). Parenting stress in mothers and fathers of children with autism spectrum disorders. M. R. Mohammadi (Ed.), A Comprehensive book on autism spectrum disorders içinde (ss. 87-106), Rijeka, Croatia: INTECH Open Acsess Pulisher.
  • Rakap, S. (2017). Otizm spektum bozukluğu ve özel eğitim. Tohum Otizm Vakfı: Sivil Düşün AB Raporu.
  • Rakap, S., Balikci, S., Parlak-Rakap, A., & Kalkan, S. (2016). An analysis of Turkish pre-service teachers’ knowledge of autism spectrum disorder: Implications for teacher preparation programs. SAGE Open, 6, 1-11. https://doi.org/10.1177/2158244016668853
  • RaoSoft. (2020). Sample size calculator. http://www.raosoft.com/samplesize.html
  • Ronald, A., & Hoekstra, R. A. (2011). Autism spectrum disorders and autistic traits: a decade of new twin studies. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 156(3), 255-274. https://doi.org/10.1002/ajmg.b.31159
  • Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., Kasari, C., Ingersoll, B., Kaiser, A. P., Bruinsma, Y., McNerney, E., Wetherby, A., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorder, 45(8), 2411-2428. https://doi.org/10.1007/s10803-015-2407-8
  • Smith, M., Rainie, L., Shneiderman, B., & Himelboim, I. (2014). Mapping twitter topic networks: from polarized crowds to community clusters. http://www.pewinternet.org/2014/02/20/mapping-twitter-topic-networks-from-polarized-crowds-to-community-clusters/
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Year 2021, Volume: 4 Issue: 2, 293 - 309, 31.05.2021
https://doi.org/10.31681/jetol.924084

Abstract

References

  • Aile ve Sosyal Politikalar Bakanlığı [The Ministry of Family and Social Policies]. (2016). Otizm Spektrum Bozukluğu Olan Bireylere Yönelik Ulusal Eylem Planı (2016-2019) [National Action Plan for Individuals with Autism Spectrum Disorders (2016-2019)]. http://www.sp.gov.tr/upload/xSPTemelBelge/files/5w4h6+otizm_eylem_plani_kitap_bakanli_onaylanan.pdf
  • Al-Farsi, O. A., Al-Farsi, Y. M., Al-Sharbati, M. M., & Al-Adawi, S. (2016). Stress, anxiety, and depression among parents of children with autism spectrum disorder in Oman: a case–control study. Neuropsychiatric Disease and Treatment, 12, 1943-1951. https://doi.org10.2147/NDT.S107103
  • Alsehemi, M. A., Abousaadah, M. M., Sairafi, R. A., & Jan, M. M. (2017). Public awareness of autism spectrum disorder. Neurosciences, 22(3), 213-215. https://doi.org/10.17712/nsj.2017.3.20160525
  • American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (DSM-5). 5 ed. American Psychiatric Association.
  • Berelson, B. (1952). Content analysis in communication research. Free Press.
  • Biber, K., Cankorur, H., Akçay, Z. N., & Şumnulu, B. (2018). Çocukları okul öncesi eğitime devam eden annelere otizm spektrum bozukluğuna yönelik farkındalık eğitimi. Electronic Turkish Studies, 13(11), 345-362. http://dx.doi.org/10.7827/TurkishStudies.13556.
  • Bitsika, V., & Sharpley, C. F. (2004). Stress, anxiety and depression among parents of children with autism spectrum disorder. Journal of Psychologists and Counsellors in Schools, 14(2), 151-161. https://doi.org/10.1017/S1037291100002466
  • Bourgeron, T. (2016). Current knowledge on the genetics of autism and propositions for future research. Comptes Rendus Biologies, 339(7-8), 300-307. https://doi.org/10.1016/j.crvi.2016.05.004
  • Boyd, B. A., McCarty, C. H., & Sethi, C. (2014). Families of children with autism: A synthesis of family routines literature. Journal of Occupational Science, 21(3), 322-333. https://doi.org/10.1080/14427591.2014.908816
  • Brian, J., Doyle-Thomas, K., Baribeau, D., & Anagnostou, E. (2016). Novel mechanisms and treatment approaches in autism spectrum disorder. Discovery Medicine, 22(119), 47-54.
  • Centers for Disease Control and Prevention [CDC]. (2020). Community report on autism. https://www.cdc.gov/ncbddd/autism/addm-community-report/documents/addm-community-report-2020-h.pdf
  • Chansa-Kabali, T., Nyoni, J., & Mwanza, H. (2019). Awareness and Knowledge Associated with Autism Spectrum Disorders Among University Students in Zambia. Journal of Autism and Developmental Disorders, 49(9), 3571-3581. https://doi.org/10.1007/s10803-019-04044-7
  • Clauset, A., Newman, M. E., & Moore, C. (2004). Finding community structure in very large networks. Physical Review E, 70(6), 066111. https://doi.org/10.1103/PhysRevE.70.066111
  • Creswell, J. W. (2012). Educational research: Planning, conducting, and evaluating quantitative and qualitative approaches to research. Merrill/Pearson Education.
  • Dillenburger, K., Jordan, J. A., McKerr, L., Lloyd, K., & Schubotz, D. (2017). Autism awareness in children and young people: Surveys of two populations. Journal of Intellectual Disability Research, 61(8), 766-777. https://doi.org/10.1111/jir.12389
  • Divan, G., Vajaratkar, V., Desai, M. U., Strik‐Lievers, L., & Patel, V. (2012). Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Research, 5(3), 190-200. https://doi.org/10.1002/aur.1225
  • Elsabbagh, M., Divan, G., Koh, Y., Kim, Y. S., Kauchali, S., Marcín, C., Montiel-Nava, C., Patel, V., Paula, C. S., Wang, C., Yasamy, M. T., & Fombonne, E. (2012). Global Prevalence of Autism and Other Pervasive Developmental Disorders: Global epidemiology of autism. Autism Research, 5(3), 160-179. https://doi.org/10.1002/aur.239
  • Gupta, V. B. (2007). Comparison of parenting stress in different developmental disabilities. Journal of Developmental and Physical Disabilities, 19(4), 417-425. https://doi.org/10.1007/s10882-007-9060-x
  • Gürsakal, N. (2009). Sosyal ağ analizi [Social network analysis]. Dora Yayıncılık.
  • Guthrie, W., Swineford, L. B., Nottke, C., & Wetherby, A. M. (2013). Early diagnosis of autism spectrum disorder: stability and change in clinical diagnosis and symptom presentation. Journal of Child Psychology and Psychiatry, 54(5), 582-590. https://doi.org/10.1111/jcpp.12008
  • Hansen, D., Shneiderman, B., & Smith, M. A. (2010). Analyzing social media networks with NodeXL: Insights from a connected world. Morgan Kaufmann.
  • Harel, D., & Koren, Y. (2001). A Fast Multi-Scale method for drawing large graphs. In Graph Drawing: 8th International Symposium, GD 2000, Colonial Williamsburg, VA, USA, September 20-23, 2000, Proceedings (No. 1984, p. 183). Springer Science & Business Media.
  • Hayward, S. M., McVilly, K. R., & Stokes, M. A. (2019). Autism and employment: What works. Research in Autism Spectrum Disorders, 60, 48-58. https://doi.org/10.1016/j.rasd.2019.01.006
  • Hendricks, D. (2010). Employment and adults with autism spectrum disorders: Challenges and strategies for success. Journal of Vocational Rehabilitation, 32(2), 125-134. https://doi.org/10.3233/JVR-2010-0502
  • Henninger, N. A., & Taylor, J. L. (2013). Outcomes in adults with autism spectrum disorders: A historical perspective. Autism, 17(1), 103-116. https://doi.org/10.1177/1362361312441266
  • Huguet, G., Ey, E., & Bourgeron, T. (2013). The genetic landscapes of autism spectrum disorders. Annual review of genomics and Human Genetics, 14, 191-213. https://doi.org/10.1146/annurev-genom-091212-153431
  • Johnson, C. P., & Myers, S. M. (2007). Identification and evaluation of children with autism spectrum disorders. Pediatrics, 120, 1183-1215. https://doi.org/10.1542/peds.2007-2361
  • Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016). Understanding the experience of stigma for parents of children with autism spectrum disorder and the role stigma plays in families’ lives. Journal of Autism and Developmental Disorders, 46(3), 942-953. https://doi.org/10.1007/s10803-015-2637-9
  • Korkmaz, B. (2010). Otizm: Klinik ve nörobiyolojik özellikleri, erken tanı, tedavi ve bazı güncel gelişmeler. Türk Pediatri Arşivi, 45(2), 37-44.
  • Landa, R. J., & Kalb, L. G. (2012). Long-term outcomes of toddlers with autism spectrum disorders exposed to short-term intervention. Pediatrics, 130(Supplement 2), S186-S190.
  • Lord, C., & Bishop, S. L. (2015). Recent advances in autism research as reflected in DSM-5 criteria for autism spectrum disorder. Annual Review of Clinical Psychology, 11, 53-70. https://doi.org/10.1146/annurev-clinpsy-032814-112745
  • Ludlow, A., Skelly, C., & Rohleder, P. (2012). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702-711. https://doi.org/10.1177/1359105311422955
  • Maenner, M. J., Shaw, K. A., Baio, J., Washington, A., Patrick, M., DiRienzo, M., Christensen, D. L., Wiggins, L. D., Pettygrove, S., Andrews, J. G., Lopez, M., Hudson, A., Baroud, T., Schwenk, Y., White, T., Rosenberg, C. R., Lee, L., Harrington, R. A., Huston, M., … Hall-Lande, J. (2020). Prevalence of autism spectrum disorder among children aged 8 years-autism and developmental disabilities monitoring network, 11 sites, United States, 2016. MMWR. Surveillance Summaries, 69(4),1-12. https://doi.org/10.15585/mmwr.ss6904a1
  • Marsack, C. N., & Perry, T. E. (2018). Aging in place in every community: Social exclusion experiences of parents of adult children with autism spectrum disorder. Research on Aging, 40(6), 535-557. https://doi.org/10.1177/0164027517717044
  • Moh, T. A., & Magiati, I. (2012). Factors associated with parental stress and satisfaction during the process of diagnosis of children with autism spectrum disorders. Research in Autism Spectrum Disorders, 6(1), 293-303. https://doi.org/10.1016/j.rasd.2011.05.011
  • Noterdaeme, M., & Hutzelmeyer-Nickels, A. (2010). Early symptoms and recognition of pervasive developmental disorders in Germany. Autism, 14(6), 575-588. https://doi.org/10.1177/1362361310371951
  • Özçelik, A. A., Soysal, Ş., Arhan, E., Demir, E., Gücüyener, K., & Serdaroğlu, A. (2015). Autism Spectrum Disorder Management Practices and Level of Knowledge Among General Pediatricians. Gazi Medical Journal, 26(4), 158-162.
  • Ozonoff, S., Iosif, A. M., Baguio, F., Cook, I. C., Hill, M. M., Hutman, T., Rogers, S. J., Rozga A., Sangha S., Sigman, M., Steinfeld, M. B., & Young, G. S. (2010). A prospective study of the emergence of early behavioral signs of autism. Journal of the American Academy of Child & Adolescent Psychiatry, 49(3), 256-266. https://doi.org/10.1016/j.jaac.2009.11.009
  • Pelletier, K., Brown, M., Brooks, D. C., McCormack, M., Reeves, J., Arbino, N., Bozkurt, A., Crawford, S., Czerniewicz, L., Gibson, R., Linder, K., Mason, J., & Mondelli, V. (2021). 2021 EDUCAUSE Horizon Report Teaching and Learning Edition. EDUCAUSE. https://library.educause.edu/resources/2021/4/2021-educause-horizon-report-teaching-and-learning-edition
  • Pisula, E. (2011). Parenting stress in mothers and fathers of children with autism spectrum disorders. M. R. Mohammadi (Ed.), A Comprehensive book on autism spectrum disorders içinde (ss. 87-106), Rijeka, Croatia: INTECH Open Acsess Pulisher.
  • Rakap, S. (2017). Otizm spektum bozukluğu ve özel eğitim. Tohum Otizm Vakfı: Sivil Düşün AB Raporu.
  • Rakap, S., Balikci, S., Parlak-Rakap, A., & Kalkan, S. (2016). An analysis of Turkish pre-service teachers’ knowledge of autism spectrum disorder: Implications for teacher preparation programs. SAGE Open, 6, 1-11. https://doi.org/10.1177/2158244016668853
  • RaoSoft. (2020). Sample size calculator. http://www.raosoft.com/samplesize.html
  • Ronald, A., & Hoekstra, R. A. (2011). Autism spectrum disorders and autistic traits: a decade of new twin studies. American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, 156(3), 255-274. https://doi.org/10.1002/ajmg.b.31159
  • Schreibman, L., Dawson, G., Stahmer, A. C., Landa, R., Rogers, S. J., McGee, G. G., Kasari, C., Ingersoll, B., Kaiser, A. P., Bruinsma, Y., McNerney, E., Wetherby, A., & Halladay, A. (2015). Naturalistic developmental behavioral interventions: Empirically validated treatments for autism spectrum disorder. Journal of Autism and Developmental Disorder, 45(8), 2411-2428. https://doi.org/10.1007/s10803-015-2407-8
  • Smith, M., Rainie, L., Shneiderman, B., & Himelboim, I. (2014). Mapping twitter topic networks: from polarized crowds to community clusters. http://www.pewinternet.org/2014/02/20/mapping-twitter-topic-networks-from-polarized-crowds-to-community-clusters/
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There are 52 citations in total.

Details

Primary Language English
Subjects Studies on Education
Journal Section Articles
Authors

Sunagül Sani-bozkurt 0000-0001-6648-9636

Publication Date May 31, 2021
Published in Issue Year 2021 Volume: 4 Issue: 2

Cite

APA Sani-bozkurt, S. (2021). A comparative examination of social perception, network structure, important nodes, and discourses regarding ASD awareness over online networks: A social network and content analysis. Journal of Educational Technology and Online Learning, 4(2), 293-309. https://doi.org/10.31681/jetol.924084


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